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I’m a married 31 year-old who has been diagnosed with fibromylagia for 12 years. I am on a quest to raise awareness and help others by sharing information and staying positive. Read more
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Felicia Fibro - Life with fibromyalgia, EMPOWERED!

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Fibro Feelings – My Awareness Day

What is Fibro Feelings?

My Fibromyalgia Awareness Day started off in a very fibromyalgia type way. The night before I unknowingly ate something bad at dinner. My IBS had horrid cramping, but after a few hours and a cup of chamomile tea I finally felt like I might be able to go to sleep. Of course, this was all happening just as I was beginning my hourly fibromyalgia info tweets, as midnight hit the eastcoast. I went to bed, but then had insomnia for the first three hours.

Sadly, I had no time to sleep in. The Helpful Hubby was participating in a non-profit health event early in the morning and I wanted to send him off. Normally I’d be there supporting him the whole way, but I wanted to make sure I took full advantage of spreading fibromyalgia awareness. Even though I was only at the event for a short amount of time I was able to talk to four people about how it was National Fibromyalgia Awareness Day. At registration we talked with a lady who said some of her friends had fibromyalgia. I thanked her for supporting her friends and she said that after she got back from The Gulf War doctors thought she had fibromyalgia herself.

purple cyberg hair

Look at all that purple "cyberg" hair!

Across the crowd I spotted a girl wearing a lot of purple and got excited that it may have been done for fibromyalgia. I complimented her hair, explained about purple being the awareness color and asked if I could take a picture of her hair. She was definitely outdoing my purple! As I was leaving I talked with a couple event volunteers. I shared that I was on the committee for our local Arthritis Walk and about it being National Fibromyalgia Awareness Day. One of the ladies said that one of their friends has lupus and they had done the Lupus Walk previously. After that I headed back home to work on awareness through social media.

Another thing I loved about the days surrounding awareness days for fibromyalgia and lupus (May 10th) was the tv mentions. Friday’s Undercover Boss showed a lady who has fibromyalgia. All the medicine she had to take was ruining her teeth and she said she had, “kind of lost [her] smile.” Part of me wonders if she meant that in more ways than one. Friday’s Ellen had Nick Cannon on and he talked about how he had kidney failure and then blood clots from his lupus. He said since his lupus diagnosis, he’s gotten in better shape than he’s ever been in. He also talked about having to quit his morning radio show so he could get more rest. Earlier in the week, Dr. Oz featured a man who started loosing weight and getting fit so he could donate a kidney to his wife. His wife, who has the same blood type, is living with lupus and will one day need a transplant. What great stories!

How was your awareness day?


Comment from Karen
Time May 14, 2012 at 10:23 am

I spent my whole day….and the weekend in a flare-up myself. Still hurting today, going to an energy healing session tonight that should give me some relief. I’ve had a ton of stress at work the last 3 weeks and it is really taking a toll on me. My IBS has been giving me a fit too, even saw my GI doc last week and we’re doing some stuff to try to relieve my symptoms. Guess I was the picture perfect example of a fibro sufferer!
Karen recently posted: Wordless Wednesday


Felicia Fibro Reply:

Sound like you’re taking lots of actions to end your flares – I hope they all work soon and that your work calms down!


Comment from Nikki Barr
Time May 14, 2012 at 11:40 am

This was my first Fibromyalgia Awareness Day as a fibro sufferer. I was recently diagnosed, though suspect I’ve had it for about 3 years. I couldn’t find any events in my area so I just used my FB page. I posted pictures and information most days leading up to the 12th. I also created an “event” for my family and friends asking them to wear purple, learn more about fibro and tell someone they knew what they had learned. I’m proud (and honored) to say I had 40 people participate. I’m hoping to get something organized for next year, but I’m not sure where to start. Any suggestions?


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