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I’m a married 31 year-old who has been diagnosed with fibromylagia for 12 years. I am on a quest to raise awareness and help others by sharing information and staying positive. Read more
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Interview with Lynne Matallana – Part II

This post is a continuation of my interview with Lynne Matallana.

Matallana lit up when I asked her what new medical research excited her the most. “The idea that we can change our brain through new technology, such as neuro-transmitters or Neuro-stimulators. The research being done on cognitive behavior therapy in conjunction with exercise.” She believes that the more we learn about how individual bodies of fibromyalgia patients react to exercise and what is appropriate for them, the more people will be feeling better. She is excited by the fact researchers are looking at more than just medications and finds it amazing that as science understands pain better, it is understanding more of how the brain works.

“In research, things are looked at as being very black and white and I think that researchers are starting to understand that the answers aren’t one-size fits all. They are learning how to differentiate. [The National Fibromyalgia Association (NFA)] is trying to put together a patient assessment tool that will show the sub-divisions of fibromyalgia.” Instead of a fibromyalgia patient having to try one thing after another to see what will help them feel better, they could take this pencil and paper assessment, find out which sub-group they belong to and in turn what actions will help them most.

Matallana often recommends yoga to those with fibromyalgia, so I asked her if she had any suggestions for someone who is wanting to start. “One of the things I think is really important is to make sure you have a yoga instructor that understands that you have a chronic pain illness. There are different types of yoga and some types of yoga work more on the meditation side and stretching side. If you have an opportunity, and I know this isn’t possible for everybody, have a one-on-one situation where the instructor helps you position pillows, rolled up towels and bolsters, it can very helpful.” Those tools are very supportive for your body.

I’ve been receiving Fibromyalgia AWARE (The NFA magazine) for around six years, so I took this opportunity to ask how the subscription funds were put to use. She explained that there are regulations dictating what things foundations can give money to, but not necessarily ones to help pay for overhead costs. “[The subscription] money goes to help pay for the things that other, more classical, funding sources won’t cover. We don’t like asking for money, but the truth is that [The NFA] won’t exist if we don’t have people helping us.”

Stay tuned for more of the interview to learn what new things the NFA is doing, how to be involved and more!

Lynne Matallana

Lynne Matallana & Fibromyalgia Aware magazine*

*Photo Credit: Image from the National Fibromyalgia Association

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