Newly Diagnosed?
Receiving a fibromyalgia diagnoses can be both scary and relieving. I have gathered together resources that I think are especially helpful for those new to their diagnosis. If you haven’t already checked out my Fibromyalgia FAQ page, I’d suggest that you start by looking over it.
These posts cover some helpful basics about learning to live with and cope with having fibromyalgia:
- Explaining Fibromyalgia to Others
- Communicate how you feel using Marbles
- One of my Favorite Tools: a Medical Notebook
- Medicines for Fibromyalgia
- Treating Pain without Pills
- Sensitivities
- “Playing” the Fibromyalgia “Hand”
- Fibro Feelings – Can do’s, but Shouldn’t do’s
- Eye Opening Revelation
- Managing Pain by Decreasing Stress
- Fibromyalgia Presentation with Dr. Holman
- National Fibromyalgia Association Coping Seminar
- National Fibromyalgia Awareness Day
These posts offer suggestions on how to more easily do activities with fibromyalgia:
- Tips for Sleeping Well
- Tips & Tools for Sleeping Well… Part I
- Tips & Tools for Sleeping Well – Part II
- Tips & Tools for Sleeping Well – Part III
- Tips for Getting Ready for the Day
- Tips & Tools for Cleaning & Homekeeping
- Tips & Tools to make Laundry Easier
- Tips & Tools for Working in the Kitchen – Part I
- Tips & Tools for Working in the Kitchen – Part II
- Can Intimacy & Chronic Pain Coexist?
- Tips & Tools for Biking
- Tips & Tools for Attending Sporting Events
- Tips & Tools to make Gardening Easier
- Tips & Tools for Traveling
- Tips and Tools for Traveling via Car
- Tips & Tools for Traveling via Airplane – Part I
- Tips & Tools for Traveling via Airplane – Part II
- Easier Entertaining
- Tips & Tools for Attending Conferences
- Being a Student with Fibromyalgia
- Tips & Tools for Enjoying Las Vegas
These posts give insight into how your family members may be feeling about your diagnosis:
- What it is like to have an Adult Child with Fibromyalgia – Part I
- What it is like to have an Adult Child with Fibromyalgia – Part II
- What it is like to have an Adult Child with Fibromyalgia – Part III
- What it is like to have an Adult Child with Fibromyalgia – Part IV
Comments
Comment from Paulette Tolman
Time November 29, 2011 at 9:15 am
I am going to MD today, loaded with info about FM & my symptoms.
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Comment from Paulette Tolman
Time November 30, 2011 at 5:22 pm
The MD took me seriously when I showed him the “Fibromyalgia for Dummies” book, and had highlighted all areas that pertained to me. He listened and we discussed lots. He is now in the process of eliminating other problem areas with blood tests, has changed some meds, and has said he believes me, but, will do testing first.
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Felicia Fibro Reply:
November 30th, 2011 at 6:36 pm
Wonderful! It is good to make sure nothing else is going on other than fibromyalgia, since many of the symptoms mimic other things.
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Comment from Katey Townsend
Time February 1, 2012 at 11:39 pm
Hi i am 20 and was recently diagnosed with firbro and ic. I am a little lost as to how to live a life with 2 diseases. My biggest problem is sleep. I go days without sleep. I try and try to sleep. New pillows, lights, temperature, and medication nothing works so i am reacing out in deperation on how to live better and sleep
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Comment from darlene bohannon
Time February 8, 2012 at 12:18 am
how can i get the magazine mailed to my home?
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Comment from darlene bohannon
Time February 8, 2012 at 12:43 am
oops im sorry it’s the fibro wave, I found it on one of your links
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Comment from Stacie
Time February 17, 2012 at 7:43 pm
OMG! I have this… I had a really bad fall in Sept 2009, Jan 2011 I woke up with severe sensitivity and the only way I can explain it is like getting out of the ocean. I hate salt water on my skin or sand and this is like that all the time. My muscles are sore and achy. I am tired. I am not myself since the fall and I wonder if this is it. My own Orthopedic never heard of my systems. I had MRI’s, nerve test etc. I am going to look at what I can do to relieve this. It’s a nightmare to me. I want it to go away. I wish us all peace with this and hopefully they can come up something to fix it…..OMG! I am going to call all my doctors tomorrow. I can’t understand why non of them mentioned this too me. I just read this article on LifeScript. Thanks to that maybe I can find some help and relief. It seems no one believes me…….
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Felicia Fibro Reply:
February 20th, 2012 at 6:54 pm
Many doctors don’t receive training on fibromyalgia and the ones that do don’t get much. The first doctor that mentioned the condition to me told me to go home and read about it since he didn’t know much about it. I hope that now that you’re honed in on a condition that is similar to your symptoms you’re able to get a diagnosis and some relief! Good luck!
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Felicia Fibro Reply:
November 30th, 2011 at 12:19 pm
That is wonderful to hear! Good luck!
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