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About Felicia

I’m a married 31 year-old who has been diagnosed with fibromylagia for 12 years. I am on a quest to raise awareness and help others by sharing information and staying positive. Read more
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Felicia Fibro - Life with fibromyalgia, EMPOWERED!

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Fibromyalgia Research

I’ve mentioned before how thankful I am for fibromyalgia research. As a person living with fibromyalgia, research gives me unwavering hope of an even better life with fibromyalgia. Once we understand the underlying science behind fibromyalgia there will be many, more effective treatments! To me, the possibilities are endless! Because fibromyalgia is so complex, scientific breakthroughs in many different areas could lead to better understanding of fibromyalgia. Some examples of these areas are pain processes, central nervous system workings and many of the overlapping conditions that are not understood yet, either. Research findings also help to create awareness among the international medical community.

There are many benefits to participating in a research study. In the past I have participated in a physical, water aerobics study for fibromyalgia and many online surveys about fibromyalgia and Irritable Bowel Syndrome. Participating in them gave me a sense of pride and involvement in a greater cause. Other benefits are being able to use new treatments before they are widely available, receiving free, expert medical care during the study and taking on an active role in your own health care. My friend, Selena, at Oh My Aches and Pains! recently wrote a wonderful article entitled Could it be True? A Blood Test to Diagnose Fibromyalgia? about her experience participating in a research study. I highly suggest reading her post about this research and volunteering to participate if you are in the Los Angeles area! (details on how to do this are in her post)

Of course, you do not need to live in L.A. to participate in every clinical trial! There are quite a few ways to find open research opportunities in your area. The National Fibromyalgia Association has a list of fibro specific clinical trials. The National Institutes of Health (NIH) has two websites that help you find trials that you’re eligible for. One, www.clinicaltrials.gov, lets you narrow down your search in MANYways (condition, location, stage of research, sponsors, procedures, etc…). Once you find a study you’re interested in participating in, you simply contact them. The other website, www.researchmatch.org, helps researchers contact you if they think you might be a match for their study. For a study to even be eligible to contact you, they are first approved by review boards, to insure patient safety. You sign up for an account on the website by sharing your contact information (must include a U.S. mailing address), medical diagnoses and your current medication list. When researchers contact you, they do not have your personal information, they just know an anonymous profile looks like a good fit for their study.

Have you participated in a clinical trial before? If so, tell me about it! If not, is there a reason you choose not to?

test tubes of blood

Participating in research can be as easy as giving blood!*

*Image Credit: from www.wikipedia.org taken by User:JHeuser on 4/5/06



Comments

Comment from pam
Time March 8, 2011 at 7:09 am

I have always been interested in participating in a trial. I will check out the links you posted. Thank you for posting them.

[Reply]

Felicia Fibro Reply:

You’re welcome, Pam! Let me know how it goes (looking for/participating in a trial).

[Reply]

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